I met this sweet girl and her mommy when she was about 6 months old...Katelin has an incredibly rare disease called PHACES. She is a strong little girl who just turned a year old...and I was thrilled to photograph this milestone for her mommy. Katelin is considered a little miracle...on "Rare Disease Day" her mother Lisa wrote this about their experience while she was pregnant and what the doctors told her, "They said, "Katelin may not make it to delivery, that if she does make it to delivery she may not live for very long, if she does live she may not be able to breathe on her own or eat on her own, that she may be severely mentally disabled." I felt like my heart had been ripped from my chest. It was the worst day of my life. my husband and I never discussed termination. We left everything in God's hands and knew that we were going to meet our beautiful baby girl. We were going to do whatever we had to do to make her life amazing. As you can see, Katelin really is a miracle. She made it to delivery and came out fighting. Has it been easy? Absolutely not, but seeing the fight and determination in that baby girl makes everything that we have been through all worth it. I would not change one thing about my beautiful girl. She has taught me so much over this past year and a half. "
I am very thankful to have met this awesome family and this super special little girl...I look forward to creating many more memories for them in the future...xoxo
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